KVANT Show Production<\/a> v\u010faka ktorej sme mohli aj t\u00fdmto sp\u00f4sobom upriami\u0165 pozornos\u0165 verejnosti na pacientov s chronick\u00fdmi, progres\u00edvnymi a neraz \u017eivot ohrozuj\u00facimi ochoreniami s ojedinel\u00fdm v\u00fdskytom. A hoci hovor\u00edme o zriedkav\u00fdch ochoreniach, ich v\u00fdskyt vzh\u013eadom na po\u010det ochoren\u00ed, ktor\u00fd sa odhaduje na 6 000 a\u017e 8 000, je vysok\u00fd. Na celom svete trp\u00ed t\u00fdmito ochoreniami viac ako 300 mili\u00f3nov \u013eud\u00ed, na Slovensku sa ich po\u010det odhaduje na 300 000. Tohtoro\u010dn\u00fd Medzin\u00e1rodn\u00fd de\u0148 zriedkav\u00fdch ochoren\u00ed zd\u00f4raz\u0148uje potrebu prija\u0165 \u013eud\u00ed s t\u00fdmito ochoreniami v spolo\u010dnosti bez predsudkov.<\/p>\n,,Sme radi, \u017ee sme sa mohli aspo\u0148 tak\u00fdmto, n\u00e1m bl\u00edzkym sp\u00f4sobom, zapoji\u0165 a vyjadri\u0165 podporu v\u0161etk\u00fdm \u013eudom s ojedinel\u00fdmi ochoreniami,\u201c povedal Michal \u0160imkovi\u010d zo spolo\u010dnosti KVANT SHOW PRODUCTION s.r.o.<\/p>\n
V najv\u00e4\u010d\u0161ej detskej nemocnici na Slovensku, N\u00e1rodnom \u00fastave detsk\u00fdch chor\u00f4b, sa lek\u00e1ri o t\u00fdchto pacientov staraj\u00fa v r\u00e1mci expert\u00edznych pracov\u00edsk pre zriedkav\u00e9 choroby. Napr\u00edklad na Detskej klinike LF UK a N\u00daDCH pracuje 6 expert\u00edznych pracov\u00edsk, na Klinike detskej hematol\u00f3gie a onkol\u00f3gie LF UK a N\u00daDCH 2 pracovisk\u00e1 a \u010fal\u0161ie na Klinike detskej oftalmol\u00f3gie LF UK a N\u00daDCH<\/p>\n","protected":false},"excerpt":{"rendered":"
N\u00e1rodn\u00fd \u00fastav detsk\u00fdch chor\u00f4b si v posledn\u00fd febru\u00e1rov\u00fd de\u0148 pripomenul Medzin\u00e1rodn\u00fd de\u0148 zriedkav\u00fdch chor\u00f4b 2022. A rovnako, ako mnoh\u00e9 in\u00e9 dominantn\u00e9 budovy, za\u017eiaril vo farb\u00e1ch loga Slovenskej aliancie zriedkav\u00fdch ochoren\u00ed. Aj touto cestou N\u00daDCH \u010fakuje za podporu spolo\u010dnosti KVANT SHOW PRODUCTION, s.r.o., KVANT Show Production v\u010faka ktorej sme mohli aj t\u00fdmto sp\u00f4sobom upriami\u0165 pozornos\u0165 verejnosti […]<\/p>\n","protected":false},"author":8,"featured_media":2913,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":[],"categories":[78],"tags":[],"yoast_head":"\n
Medzin\u00e1rodn\u00fd de\u0148 zriedkav\u00fdch chor\u00f4b | National Institute of Children\u2019s Diseases<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/nudch.eu\/en\/medzinarodny-den-zriedkavych-chorob\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Medzin\u00e1rodn\u00fd de\u0148 zriedkav\u00fdch chor\u00f4b | National Institute of Children\u2019s Diseases\" \/>\n<meta property=\"og:description\" content=\"N\u00e1rodn\u00fd \u00fastav detsk\u00fdch chor\u00f4b si v posledn\u00fd febru\u00e1rov\u00fd de\u0148 pripomenul Medzin\u00e1rodn\u00fd de\u0148 zriedkav\u00fdch chor\u00f4b 2022. A rovnako, ako mnoh\u00e9 in\u00e9 dominantn\u00e9 budovy, za\u017eiaril vo farb\u00e1ch loga Slovenskej aliancie zriedkav\u00fdch ochoren\u00ed. Aj touto cestou N\u00daDCH \u010fakuje za podporu spolo\u010dnosti KVANT SHOW PRODUCTION, s.r.o., KVANT Show Production v\u010faka ktorej sme mohli aj t\u00fdmto sp\u00f4sobom upriami\u0165 pozornos\u0165 verejnosti […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/nudch.eu\/en\/medzinarodny-den-zriedkavych-chorob\" \/>\n<meta property=\"og:site_name\" content=\"National Institute of Children\u2019s Diseases\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/nudch.eu\/\" \/>\n<meta property=\"article:published_time\" content=\"2022-03-01T08:31:00+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2022-11-25T12:20:39+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/nudch.eu\/wp-content\/uploads\/2022\/03\/nudch-budova.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1922\" \/>\n\t<meta property=\"og:image:height\" content=\"1170\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Smikalova\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Smikalova\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Medzin\u00e1rodn\u00fd de\u0148 zriedkav\u00fdch chor\u00f4b | National Institute of Children\u2019s Diseases","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/nudch.eu\/en\/medzinarodny-den-zriedkavych-chorob","og_locale":"en_US","og_type":"article","og_title":"Medzin\u00e1rodn\u00fd de\u0148 zriedkav\u00fdch chor\u00f4b | National Institute of Children\u2019s Diseases","og_description":"N\u00e1rodn\u00fd \u00fastav detsk\u00fdch chor\u00f4b si v posledn\u00fd febru\u00e1rov\u00fd de\u0148 pripomenul Medzin\u00e1rodn\u00fd de\u0148 zriedkav\u00fdch chor\u00f4b 2022. 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